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Appendix 3: Glossary

Audit Committee

A committee established in accordance with Section 17 of the PGPA Rule to provide independent advice and assurance to the OTA Board, as the accountable authority, particularly in relation to risk control, compliance frameworks, and external accountabilities.

Australian Organ and Tissue Donation and Transplantation Authority (OTA)

A statutory body established under the Australian Organ and Tissue Donation and Transplantation Authority Act 2008 to deliver the national program. Also known as the Organ and Tissue Authority (OTA).

Australian and New Zealand Paired Kidney Exchange (ANZKX) Program

A kidney paired donation program between Australia and New Zealand. It aims to increase living donor kidney transplants for patients who are eligible for a kidney transplant and have a living donor who is willing but unable to donate because of an incompatible blood type or tissue type. Incompatible pairs are enrolled in the program and are matched against other incompatible pairs.

Best practice guideline for offering organ and tissue donation in Australia

A guideline developed to outline the preferred approach when speaking with families about organ donation. The guideline includes the goals of family communication, staff roles and responsibilities, timing and elements of the family donation conversation, training requirements and review of practice.

Clinical guidelines for organ transplantation from deceased donors

Guidelines developed by the Transplantation Society of Australia and New Zealand that inform eligibility and assessment criteria for organ transplantation, and protocols for the allocation of deceased donor organs to wait-listed patients.

Clinical Practice Improvement Program (CPIP) Phase 3

A program that comprises seven elements of clinical strategic focus with associated reportable key performance indicators (KPIs). These KPIs are key to achieving best-practice organ and tissue donation in the intensive care and emergency department environment. The CPIP Phase 3 elements are implemented in all DonateLife hospitals and are fundamental to the work of hospital donation specialists and the DonateLife Agencies.

Consent rate

The number of consents as a percentage of all requests made to potential deceased donor families.

DonateLife

The Australian Government brand for all initiatives undertaken as part of the national program to increase organ and tissue donation for transplantation.

DonateLife Agencies

Agencies responsible for delivering the national program in their respective state or territory. They employ specialist staff in organ and tissue donation coordination, professional education, donor family support, communications, and data and audit roles.

DonateLife Audit

A nationally consistent retrospective audit to collect data about hospital deaths in the context of organ donation.

DonateLife Network

The national network of state-based organ and tissue donation agencies and hospital-based staff focused on increasing organ and tissue donation.

DonateLife Thank You Day

A national day to acknowledge organ and tissue donors and families who agreed to donation.

DonateLife Week

A national awareness week promoting organ and tissue donation.

Donation after brain death

Organ donation after a person's death has been determined on the basis of irreversible cessation of all brain function.

Donation after circulatory death

Organ donation after a person's death has been determined on the basis of irreversible cessation of circulation of blood in the body.

Donor Family Study

A retrospective study that is conducted every second year to seek feedback on the donation experience of families who were asked to make a donation decision.

Electronic Donor Record

A national electronic web-based IT system for managing the donation process and offering organs for transplantation.

Ethical guidelines for organ transplantation from deceased donors

Guidelines that inform ethical practice and decision-making by everyone involved in assessing the eligibility of an individual for transplantation, assessing the suitability of donor organs for transplantation, and allocating organs from deceased donors.

Family Donation Conversation workshop

Workshop-based training that provides health professionals with the knowledge and skills to communicate with families about death and donation, and to support families to make an informed donation decision.

Hospital-based staff

Specialist hospital staff, including medical and nursing donation specialists, funded by the Australian Government to facilitate organ and tissue donation and to educate and support the hospital staff involved.

Introductory Donation Awareness Training

Workshop-based training that provides an overview of the donation pathways, the donation process, and how to refer patients to the DonateLife Agency or hospital donation specialist team. It is mainly targeted to ICU and ED staff as well as other clinicians and support staff in the hospital.

Organ and Tissue Authority Board

Since 1 July 2017, the accountable authority under the Public Governance, Performance and Accountability Act 2013 and the decision-making body for the OTA.

Organ Donation Hospital Support Funding

Australian Government funding provided to state and territory health departments, local health districts or individual hospitals for the bed and other infrastructure costs associated with organ donation to ensure costs are not a barrier for organ donation to proceed.

OrganMatch

A sophisticated software system developed by the OTA in partnership with the Australian Red Cross Blood Service. This system replaces the National Organ Matching System (NOMS) and facilitates optimal matching of donor organs to transplant recipients.

Portfolio Budget Statements

Statements prepared by portfolios to explain the Budget appropriations in terms of outcomes and programs.

Request rate

The number of requests as a percentage of all potential deceased donors.

State Medical Directors

Leaders of the organ and tissue donation sector in each jurisdiction who drive clinical practice change to increase organ and tissue donation rates.