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Corporate governance

The AIHW’s governance framework provides the structure in which we operate to achieve our purpose, ensure transparency and accountability, manage resources and mitigate risks.


AIHW's corporate governance Diagram showing the AIHW's corporate governance hierarchy. The AIHW Board sits at the top. The risk audit and finance committee and the ethics committee report to the Board. The CEO reports to the Board. The Deputy CEO reports to the CEO. The Executive Committee reports to the CEO. The data governance committee, iCT steering committee, statistical leadership committee and security committee report to the Executive Committee


The AIHW was established as a Commonwealth statutory authority in 1987 as the Australian Institute of Health.

In 1992, its role expanded to include welfare-related information and statistics, and the organisation was renamed the Australian Institute of Health and Welfare. Its composition, functions and powers in the analysis, reporting and dissemination of the nation’s health- and welfare- related information and statistics are outlined in its enabling legislation, the Australian Institute of Health and Welfare Act 1987 (AIHW Act).

The AIHW’s functions are prescribed in section 5 of the AIHW Act and presented in About the AIHW.

The AIHW Act requires the AIHW to publish information in the public domain. It also contains a strict confidentiality provision. Section 29 of the Act prohibits the release of documents and/or information ‘concerning a person’ held by the AIHW other than in compliance with any written terms and conditions imposed by the data provider.

Section 31 of the AIHW Act requires us to produce a report on Australia’s health and on Australia’s welfare every 2 years, and provide them to the Minister for Health in the timeframes prescribed in the AIHW Act. The minister is required to table these reports in Parliament within 15 sitting days of receipt.

As a Commonwealth entity, the AIHW is also required to comply with the Privacy Act 1988 (Privacy Act), which imposes strict obligations in relation to the collection, use and disclosure of personal information. Hence, the data in our care are protected by two sets of obligations: those contained in the AIHW Act and those in the Privacy Act.

In certain circumstances, the AIHW Ethics Committee may authorise the release of personal information for medical research that would otherwise constitute a breach of an Australian Privacy Principle in the Privacy Act.

Accountability to the Minister for Health and Parliament

The AIHW is part of the Health portfolio. The AIHW Board is accountable to the Parliament of Australia through the Minister for Health. It informs the minister of its activities as required by the AIHW Act and the PGPA Act.

The Minister for Health—and other relevant ministers in the Australian Government and state and territory governments—have early access to our products under embargo arrangements.

The CEO and senior AIHW executives may be required to attend Senate estimates hearings as part of the Health portfolio and to provide expert evidence at parliamentary inquiries.

Ministerial directions

No ministerial directions under section 7 of the AIHW Act were received in 2019–20.

Government policy orders

No government policy orders under section 22 of the PGPA Act were applied to the AIHW in 2019–20.

AIHW Board

The AIHW Board is established by section 8 of the AIHW Act and is the AIHW’s accountable authority under the PGPA Act. Its main function under the AIHW Act is to ensure the proper, efficient and effective performance of the AIHW. The board operates under a Charter of Corporate Governance (see www. aihw.gov.au/about-us/our-governance/our- charter). The board’s composition is outlined in section 9 of the AIHW Act.

The AIHW Board met 4 times in 2019–20. Appendix 2: Meeting attendance and remuneration provides details of the meetings attended by board members.

Board members, other than the CEO, are appointed by the Minister for Health and hold office for a specified term not exceeding 5 years. In 2019–20, the minister reappointed the Chair, Mrs Louise Markus, for a further 3-year term to 13 December 2022. The minister also reappointed Dr Zoran Bolevich, Ms Christine Castley and Ms Marilyn Chilvers for another 3 years. There were no outgoing members in 2019–20.

The CEO is an ex-officio board member. Under section 18F of the AIHW Act, the CEO is not to be present at any deliberation of the board, or take part in any decision, that relates to their appointment, remuneration or performance.

Board members are paid an annual fee determined by the Remuneration Tribunal. As at 30 June 2020, members were paid in accordance with Remuneration Tribunal (Remuneration and Allowances for Holders of Part-time Public Office) Determination 2019. The CEO and members who were Australian Government, state or territory public servants did not receive any remuneration. Information on the fees paid to board members is in Appendix 2: Meeting attendance and remuneration.

Board members

Information about board members is current as at 30 June 2020 and includes their qualifications, tenure, current positions and professional affiliations.

Louise Markus

Louise Markus BSocWk


Term: 14 December 2019–13 December 2022

Previous term: 14 December 2016–13 December 2019

Mrs Markus was elected to the House of Representatives in 2004 and 2007 for the seat of Greenway and in 2010 for the seat of Macquarie. During her time in the Parliament of Australia, she held the positions of shadow parliamentary secretary for immigration and citizenship and shadow minister for veterans’ affairs. Mrs Markus left the House of Representatives on 2 July 2016.

During her career as a social worker, Mrs Markus worked in the Department of Social Security, Wesley Mission, as a Technical and Further Education teacher and led multidisciplinary teams in the health sector. Since 2016, she has stepped into health coaching, empowering people to choose a lifestyle for optimal health, while continuing to serve in her local community in numerous volunteer roles.

Erin Lalor

Erin Lalor AM BSc (Hons) (Speech and Hearing), GAICD, PhD, GCCM

Deputy Chair

Term: 3 December 2018–2 December 2021

Previous terms: 21 November 2012–20 February 2013; 1 March 2013–29 February 2016; 23 March 2016–22 March 2017; 24 March 2017–23 March 2018; 24 March 2018–23 June 2018

Dr Lalor was appointed CEO of the Alcohol and Drug Foundation in November 2017.

She has over 20 years of leadership experience in the health sector, working in clinical, academic and executive roles. She was previously the CEO of the National Stroke Foundation and a director of the World Stroke Organization.

Dr Lalor is the Chair of the AIHW’s Chronic Conditions Advisory Group. She is a former director of VincentCare Victoria, and a member of the Victorian Liquor Control Advisory Council and the National Alliance for Action on Alcohol. She was twice recognised as a Victorian finalist in the Telstra Businesswoman of the Year awards and identified in the Financial Review’s Top 100 Women of Influence in 2013.

Dr Lalor was awarded a Member of the Order of Australia in January 2019 for her services to health through the not-for-profit sector and to people with stroke.

Barry Sandison

Barry Sandison BBusMgt, FANZSG

AIHW CEO, Executive Director

Term: 5 May 2016–4 May 2021;

Ex-officio appointment

See Chief Executive Officer for the CEO’s biography.

Zoran Bolevich

Zoran Bolevich DM, MBA, FRACMA

Non-executive Director

Term: 3 March 2020–

2 March 2023

Previous terms: 11 February 2016–27 November 2018; 3 December 2018–2 December 2019 Dr Bolevich is the Chief Executive of eHealth NSW and the Chief Information Officer for NSW Health. eHealth NSW is a specialised agency within NSW Health, responsible for planning, implementing and supporting a digitally enabled, integrated and patient-centric health information environment. During his 25-year career in health, he worked in a range of senior health management and information and communication technology (ICT) leadership roles in Australia and New Zealand.

Before joining eHealth NSW, Dr Bolevich worked at NSW Health as executive director for health system information and performance reporting, and as acting deputy secretary for system purchasing and performance.

Christine Castley

Christine Castley LLB, BA, MA, MPA

Non-executive Director

Term: 3 March 2020–2 March 2023

Previous term: 3 December 2018–2 December 2019

Ms Castley has served in multiple senior leadership roles across the Queensland Government, with significant experience in strategic policy, governance and service delivery. She is Deputy Director-General in the Department of the Premier and Cabinet. Previously, she was deputy director-general, housing, homelessness and sport in the Department of Housing and Public Works.

In 2014 and 2015, Ms Castley led the Secretariat to the Taskforce on Domestic and Family Violence, working with the Chair of the Taskforce, the Hon. Dame Quentin Bryce AD CVO, government, opposition and independent members of Parliament, as well as community-sector representatives. She has also worked in a variety of agencies, including Natural Resources and Mines, State Development and the Queensland Performing Arts Trust.

Marilyn Chilvers

Marilyn Chilvers BEc (Hons), MAppStat, GradDipTertEd

Non-executive Director

Terms: 3 March 2020–2 March 2023

Previous terms: 18 January 2016–17 January 2017; 19 January 2017–18 January 2018; 19 January 2018–18 April 2018; 19 April 2018–30 June 2018; 3 December 2018–2 December 2019

Ms Chilvers is an Executive Director in the New South Wales Government, working in the Customer, Delivery and Transformation Division of the Department of Customer Service. The focus of her current role is to drive data integration and analysis initiatives to improve outcomes for citizens, particularly those who are most vulnerable and at risk. She led the design, development and implementation of the NSW Human Services Outcomes Framework to enable data sharing, modelling and measurement of outcomes and benefits for New South Wales citizens, and the whole-of-government NSW Linked Data Framework initiative to guide decision makers in their approaches to designing and executing human service data linkage projects. Ms Chilvers is currently shaping and co-leading complex integrated data initiatives, including the National Disability Data Asset and the NSW Stronger Communities Data Partnership.

Christine Gee

Christine Gee MBA

Non-executive Director

Term: 3 December 2018–2 December 2023

Ms Gee is the CEO of the Toowong Private Hospital. She is a member of the Toowong Private Hospital Board, Treasurer of the Private Hospitals Association of Queensland and Chair of its Psychiatric Subcommittee. She is a past national president and current board member of the Australian Private Hospitals Association, a member of its Private Psychiatric Hospitals Data Reporting and Analysis Management Committee and Chair of its Policy and Advocacy Taskforce and Psychiatric Committee.

Ms Gee is a member of the Board of the Australian Commission on Safety and Quality in Health Care. She is a member of the Queensland Medical Board and Chair of the Medical Board of Australia’s Sexual Boundaries Notifications Committee.

Romlie Mokak

Romlie Mokak BSocSc, PGDipSpEd

Non-executive Director

Term: 3 December 2018–2 December 2023

Mr Mokak is a Djugun man, a member of the Yawuru people and a Commissioner with the Productivity Commission.

He led key national Aboriginal and Torres Strait Islander organisations as CEO of the Lowitja Institute and the Australian Indigenous Doctors’ Association.

Previously he worked for the Australian Government where he had policy and program responsibility in areas such as substance use, male health and eye health, within the Office for Aboriginal and Torres Strait Islander Health. At the state level, he was the first Aboriginal policy officer appointed to the New South Wales Department of Ageing and Disability.

Mr Mokak was a past chair of the National Health Leadership Forum, the Canada–Australia Indigenous Health and Wellness Working Group and the Pacific Region Indigenous Doctors Congress CEOs’ Forum.

Christine Pascott

Christine Pascott MBBS, FRACGP, GAICD

Non-executive Director

Term: 3 December 2018–2 December 2023

Dr Pascott is a general practitioner with a focus on holistic physical and mental health care, including continuity of care between tertiary and primary health-care settings. She was medical director of the Medical Centre at the University of Western Australia where she led a team of general practitioners, registered and mental health nurses, visiting specialists and health promotion officers. She is studying Infectious Diseases Intelligence and was infection control officer for the Faculty of Health and Medical Sciences at the University of Western Australia.

Dr Pascott is a graduate of the Australian Institute of Company Directors and a member of the Medical Defence Association National Board. She is a Clinical Reference Lead for the Australian Digital Health Agency.

Michael Perusco

Michael Perusco BBus (Acc)

Non-executive Director

Term: 3 December 2018–2 December 2023

Previous terms: 21 November 2012–20 February 2013; 1 March 2013–29 February 2016; 23 March 2016–22 March 2017; 24 March 2017–23 March 2018; 24 March 2018–23 June 2018

Mr Perusco commenced as CEO of Berry Street in February 2018. Before that he was CEO of St Vincent de Paul Society (New South Wales) and Sacred Heart Mission. He has worked in the PM&C, leading the social inclusion agenda, not-for-profit reform agenda and other social policy areas. He has also worked in the commercial sector at KPMG and Arthur Andersen.

Mr Perusco is a member of the Victorian Government’s Roadmap Implementation for Reform Ministerial Advisory Group, the Aboriginal Children’s Forum and the Centre for Excellence in Child and Family Welfare. He was a finalist in the 2010 Victorian Australian of the Year awards.

Cathryn Ryan

Cathryn Ryan RN, BEd, GDipHlthAdmin, GDipENT (UK), GCertCritCare(Emerg), GAICD

Non-executive Director

Term: 3 December 2018–2 December 2023

Ms Ryan worked for the public and private health sectors in both Australia and the United Kingdom for over 35 years. She has held a wide range of operational and senior managerial roles, focusing on care outcomes, efficiency, productivity and funding.

Ms Ryan is the Group Director for Health Funding and Patient Services with Cabrini Health which provides acute, subacute and aged care services in Victoria. She was previously general manager—health funding, strategy and performance at St John of God Health Care, where she headed an integrated team responsible for funding, health information, audit and related analytics for over 10 years. Ms Ryan also has over 10 years’ experience as a non-executive director of a not-for-profit organisation for children with special needs. She is a member of Catholic Health Australia’s Senior Executive Forum and a member of the Prostheses Listing Advisory Committee.

Simone Ryan

Simone Ryan BMedSci, MBBS, FAFOEM (RACP), MOccEnvHlth, ACCAM, DAME

Non-executive Director

Term: 3 December 2019–2 December 2021

Previous terms: 1 September 2016–31 August 2017; 1 September 2017–30 March 2018; 31 March 2018–30 June 2018

Dr Ryan is an occupational physician, the founder and CEO of TOTIUM (formerly One Life. Live It.), a multinational corporate health-care business.

As a medical specialist and pioneer, she is well known for her passion and dedication to ensuring optimum health for every Australian worker. Her professional objective is to educate corporate Australia in realising the benefits of good health in the workplace and the health benefits of good work, and how both combine to increase corporations’ bottom line.

Dr Ryan is a former non-executive and risk director at the Royal Australasian College of Physicians. She is a consultant to various multinational corporations, including Australian Securities Exchange companies. She is also an enthusiastic member of Women on Boards, mentoring younger females who are starting out in their career.

Risk, Audit and Finance Committee

The RAFC authorises and oversees the AIHW’s audit program and reports to the board on strategic risks, audit and financial matters (see Financial management and Risk oversight and management). The committee’s charter can be found in our Charter of Corporate Governance, www.aihw.gov.au/about-us/our-governance/ our-charter.

As at 30 June 2020, the committee comprised:

  • 3 non-executive board members—Mr Michael Perusco (Chair), Dr Erin Lalor and Dr Simone Ryan. Details of their professional experience and qualifications are available under ‘AIHW Board’ earlier in this chapter
  • 1 independent member—Mr Alistair Nicholson.

Meeting attendance and remuneration provides details of the meetings attended by RAFC members.

Alistair Nicholson

Alistair Nicholson BSc, CISA, CISM

Independent member

Term: 1 January 2020–31 December 2020

Mr Nicholson is a Director of e-Strategists Pty Ltd. He is currently a member of the Canberra Chapter Board of ISACA (the international professional information systems audit and control association), and a past member of the Australian Computer Society Canberra Chapter Board. He is active in governance, risk management, and cybersecurity framework development and consultative committees. Mr Nicholson’s industry awards include a Government Technology Efficiency Award and an IBM Asia/Pacific Achievement Award.


The contract with the previous internal auditor, Protiviti, expired on 30 June 2019. Based on an analysis of competitive proposals, the RAFC recommended that the AIHW appoint Synergy as its new internal auditor with effect from 1 July 2019. The RAFC thanked Protiviti for its many years of service as internal auditor.

Senior representatives from our internal auditor and the Australian National Audit Office (ANAO), our external auditor, attend meetings of the RAFC. The RAFC received the ANAO’s audit report on the 2018–19 financial statements. It also reviewed recommendations from internal audits on:

  • the management of data holdings—to ensure the integrity and protection of data
  • the management of payroll—to review the accuracy of payroll payments made to staff, assess the effectiveness of processes and controls that support payroll activities and the effectiveness of controls that support employees’ timesheet entries.

Appropriate action in response to the recommendations of these internal audits is underway.

Synergy began an internal audit in 2019–20 on our Project Management Office—an internal unit established to guide project managers and to provide a holistic view of all projects to ensure consistency and adherence to standards.

Remuneration Committee

The AIHW Board is the employing body of the CEO. The CEO position is in the Principal Executive Office structure administered by the Remuneration Tribunal.

The Remuneration Committee advises the board on the CEO’s performance and remuneration, within the parameters set in the Remuneration Tribunal (Principal Executive Offices—Classification Structure and Terms and Conditions) Determination 2020.

As at 30 June 2020, the committee comprised:

  • Chair of the AIHW Board—Mrs Louise Markus (Chair)
  • Chair of the Risk, Audit and Finance Committee—Mr Michael Perusco
  • 1 other board member—Dr Christine Pascott.

Meeting attendance and remuneration provides details of the meetings attended by Remuneration Committee members.

AIHW Ethics Committee

The AIHW Ethics Committee is established under section 16 of the AIHW Act. Its main responsibility is to advise on the ethical acceptability or otherwise of current or proposed health- and welfare-related activities of the AIHW, or of bodies with which we are associated. The Australian Institute of Health and Welfare (Ethics Committee) Regulations 2018 prescribe the committee’s functions and composition and can be found at www.legislation.gov.au/Details/ F2018L00317.

The committee is recognised by the National Health and Medical Research Council as a properly constituted human research ethics committee, and an annual report of its activities in each calendar year is provided to the council.

Subject to the requirements of the AIHW Act and the Privacy Act, we may release personal health and welfare data for research purposes with the written approval of the committee, provided that release is consistent with the terms and conditions under which the data were supplied. The committee also approves the establishment of new health and welfare data collections. The Ethics Committee Chair is paid an annual fee and members are paid a daily sitting fee as determined by the Remuneration Tribunal. As at 30 June 2020, members were paid in accordance with Remuneration Tribunal (Remuneration and Allowances for Holders of Part-time Public Office) Determination 2019.

Committee members

Information about committee members was current as at 30 June 2020 and includes qualifications, tenure, current positions and professional affiliations. Information on attendance at Ethics Committee meetings is at Meeting attendance and remuneration.

Photo of AIHW Ethics Committee
AIHW Ethics Committee. Front row (left to right): Damien Tillack, Margaret Reynolds and Tim Driscoll. Middle row (left to right): Barbara Anderson and Barry Sandison. Back row (left to right): Owen Bradfield, Nicholas White, Wayne Jackson, Amanda Ianna and Maryjane Crabtree.

Wayne Jackson

Wayne Jackson PSM BEc (Hons)


Term: 1 July 2019–30 June 2022

Previous terms: 1 July 2013–30 June 2016; 1 July 2016–30 June 2019

Mr Jackson is a retired Australian Government public servant, having served as deputy secretary in PM&C and the (then) Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA). He chaired a wide range of interdepartmental and corporate committees, including the FaHCSIA Risk Assessment and Audit Committee and the Research Committee, and was a member of the Australian Statistics Advisory Council.

Mr Jackson was awarded a Public Service Medal in 2006 for outstanding service in the development and implementation of social policy. He served as a board member of Aboriginal Hostels Limited from 2009 to 2016.

Barry Sandison

Barry Sandison BBusMgt, FANZSG


See Chief Executive Officer for the CEO’s biography.

Barbara Anderson

Barbara Anderson BPsych (Hons), MPsych (Clinical)

Person experienced in the professional care, counselling and treatment of people

Term: 27 June 2019–26 June 2022

Ms Anderson is a clinical psychologist with 16-years’ experience providing services within the government, non-government and private sectors. She is registered with the Psychology Board of Australia and is a Member of the Australian Psychological Society and Fellow of the Clinical College. Her background includes management, clinical governance roles, community education and program development to enhance the provision of mental health services. Ms Anderson currently works in a community youth-based mental health service and in a private practice in Townsville.

Owen Bradfield

Owen Bradfield MBBS (Hons), BMedSc (Hons), LLB, MBA, FRACGP

Person experienced in the professional care, counselling and treatment of people

Term: 27 June 2019–26 June 2022

Dr Bradfield is a registered medical practitioner, health lawyer and PhD candidate at the University of Melbourne. He has a research interest in patient safety, doctors’ health and medical regulation.

Dr Bradfield is Deputy Chairperson of the Patient Review Panel, a Member of the Suitability Panel and a Lawyer Member of the Human Research Ethics Committees of the Victorian Department of Health and Human Services and the Victorian Department of Justice and Community Safety. He is a 2020 Fulbright Future Scholar.

Maryjane Crabtree

Maryjane Crabtree BA/LLB, GAICD

Person who is a lawyer

Terms: 14 April 2019–13 April 2022

Previous term: 14 April 2016–13 April 2019

Ms Crabtree was a partner of Allens Linklaters, until her retirement in 2016. She is currently the President of the Epworth HealthCare Board of Management, Deputy Chair of the Racing Analytical Services Board and a member of Chief Executive Women, the Victorian Legal Admissions Board, the Board of Ormond College and the Board of Rugby Victoria.

Tim Driscoll

Tim Driscoll MBBS, BSc (Med), FAFOEM, FAFPHM, PhD, MOHS

Person experienced in areas of research regularly considered by the committee

Term: 1 July 2019–30 June 2022

Previous term: 1 July 2016–30 June 2019

Professor Driscoll is an occupational epidemiologist and a specialist physician in occupational and environmental medicine and public health medicine. He is a Professor in epidemiology and occupational medicine in the Sydney School of Public Health at the University of Sydney, where he is the Director of the Master of Public Health.

Amanda Ianna

Amanda Ianna GradCert ChangeMgt, AGSM Nominee of Registrars of Births, Deaths and Marriages

Ex-officio appointment

Ms Ianna has extensive experience in the field of civil registration, organisational change and leadership. She is currently the 17th Registrar (since 1856) at the New South Wales Registry of Births Deaths and Marriages which she commenced in 2014, one of only two women to hold this position.

Ray Mahoney

Ray Mahoney HlthScD, GradCertAcadPrac, GradCertIRPRO, MHSc

Person experienced in areas of research regularly considered by the committee

Term: 11 September 2019–10 September 2022

Dr Mahoney is a Senior Research Scientist at the Australian E-Health Research Centre at the Commonwealth Scientific and Industrial Research Organisation (CSIRO), an adjunct academic in the Faculty of Medicine at the University of Queensland and the Faculty of Health at Queensland University of Technology. His career spans state and territory government roles and the Aboriginal and Torres Strait Islander Community Controlled Health sector. Dr Mahoney is a descendant of the Bidjara people of central-west Queensland.

Margaret Reynolds

Margaret Reynolds BA, Dip Special Ed

Female representing general community attitudes

Term: 17 August 2017–16 August 2020

Previous terms: 17 August 2011–16 August 2014; 17 August 2014–16 August 2017

The Hon. Margaret Reynolds has had a career in education and social policy. She is a former senator for Queensland and served as minister for local government and the status of women. She was CEO of National Disability Services in Tasmania and was an inaugural member of the Council for Aboriginal Reconciliation.

Damien Tillack

Damien Tillack BA, BEd (Grad)(Sec)

Male representing general community attitudes

Term: 28 March 2019–27 March 2022

Mr Tillack is a primary school principal. His current appointment is Principal at Townsville Central State School. He has been an educator for over 20 years and is currently completing a Master of Educational Leadership at the University of Queensland. Mr Tillack’s previous appointment was principal, Vincent State School.

Nicholas White

Nicholas White BA (Hons), GradDipEd, PhD

Person performing a pastoral care role in a community

Term: 12 December 2017–11 December 2020

The Reverend Dr White is a social anthropologist and Anglican priest, currently Archdeacon for Diocesan Partnerships with the Anglican Diocese of Melbourne. He has held social policy roles in the Victorian Department of Premier and Cabinet and the Department for Victorian Communities.

The Reverend Dr White also serves on the Ethics Committee of the Brotherhood of St Laurence.

Work of the committee

The committee met 6 times in 2019–20 and provided approvals regarding the ethical acceptability of 274 new or modified projects and data collections. The committee typically meets 5 times a year. However, 2 shorter teleconferences were held in lieu of the final meeting of 2019–20, due to the COVID-19 pandemic.

Applications for new projects and to establish new data assets

In 2019–20, the committee considered 68 new applications, compared with 58 in 2018–19 and 76 in 2017–18. All 68 new applications were approved by the committee.

Of the 68 new applications, 24 were submitted from Australian Government agencies, and the remaining were submitted by researchers from external organisations, such as state and territory government departments, research centres affiliated with universities, and large metropolitan teaching hospitals.

Information about projects approved by the committee involving data linkage, including a description and the organisation leading the research, can be found at www.aihw.gov.au/our-services/data-linkage/approved-aihw-linkage-projects.

A list of the most commonly linked AIHW-held data sets can be found at www.aihw.gov.au/our-services/data-linkage/data-collections.

New applications considered by the committee included 9 by the AIHW to establish new data assets in the areas of health, burden of disease, veterans’ health and welfare, and cancer screening and treatment.

Information about the data assets we hold can be found at www.aihw.gov.au/about-our-data/our-data-collections.

Project monitoring

The committee monitors approved projects to their completion, and considers requests for modifications to previously approved projects. Researchers submitted 452 annual monitoring reports in 2019–20.

Requests for modification or extension

The committee considered 206 requests for amendment. Approximately 61% (126) were requests for an extension of time and/or proposed changes to the project research team.

Finalised projects and publication of research outcomes

To ensure that research outcomes are freely available, the committee requires public dissemination of the results of approved projects. In 2019–20, it received 15 final project reports accompanied by associated research results. In total, details of 91 publications arising from research approved by the committee were reported in annual and final monitoring reports, most of which were published in peer-reviewed journals or other publicly available reports, or on websites.

In limited circumstances, results are not released into the public domain. An example is when data are provided to a government department to enable it to create a model for internal use. In this situation, it is expected that any learnings are shared among other interested government agencies.